We don't use your medical information at all. We protect it.
About

About {Pain}Train — where it came from and why it works

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Our mission

{Pain}Train’s mission is to enable patients with chronic pain to record and store all relevant information about their pain, and to easily share that information with medical practitioners and others they choose to share it with.

Vision

{Pain}Train’s vision is to empower health practitioners and their patients, to improve the chronic pain journey.

What you can do on pain-train.com.au

Users of {Pain}Train can:

Place their medical information on the site — and edit it, review it, update it, etc;

pt-body-map

(Image 1) Click on the body-chart to show the places the patient has pain, then click from options to describe and record the type and intensity of the pain;

access_token_slider(Image 2) Allow and revoke access so that anyone — most
likely, a health care practitioner, family member, or carer — to view their online {Pain}Train profile.

(Image 3) Record their mood and whether they are consuming or not consuming medication daily for a sample.

Easily provide their medical records to their new HCP if they change their HCP without having to contact their previous HCP to provide a copy of their records (HCPs are often very slow to transfer records);

(Image 4) Keep an online record of how they’re going, what
appointments they have attended, upload their x-rays and reports, and enter details about what they can and can’t do — for example: make a cup of tea, walk the dog, sit at a desk for an hour, or
4 hours.

pt-journey

{Pain}Train’s Yearly fee of $49

Each use of the site is free. And the user can have a free one-month trial of the site.

The {Pain}Train user pays an annual fee of $49 (Australian dollars).  The first payment is due on the first of:

  • the end of their one-month free trial period; or
  • when they first electronically invite anyone — most likely, a health care practitioner, family member, or carer — to view their online {Pain}Train profile.

The fee includes the Australian Goods and Services tax which applies to Australian residents.

Download or read our pricing structure…

Why {Pain}Train is different

Many online medical record systems have failed — despite significant government and corporate spending — due to concerns about privacy, “function creep”, lack of patient control, and more.

“Empowering patients with resources and encouraging them to participate actively in care/planning – so vital.” – Dr Nick Christelis Director, Victoria Pain Specialists


MBBCH, FRCA, FFPMRCA, FANZCA, FFPMANZCAPain Specialist Physician & Anaesthetist

{Pain}Train is different from the other online medical records storage sites because it springs from the experience of Soula Mantalvanos, a patient with chronic pain. Soula and her husband Theo founded {Pain}Train in 2014. 

Soula’s pain story — the accident and the pain

Soula and her husband Theodore own a graphic design business.

One day, Soula was working on a design brief for a client when the fit-ball she was sitting on exploded. She fell and damaged her pudendal nerve, causing her extreme, ongoing — 9 years ongoing — chronic pain. If you and Soula were sitting on a bench and you started to hum, the vibrations through the bench would hurt Soula.

Soula Mantalvanos with self portrait marionette (made by Colleen Burke)

Soula has “tried a thousand things” and consulted “loads of experts” to try to solve her chronic pain. Each time Soula sees a new expert, she has to:

  • retell her story — describing her capacities before the accident, restating the injury’s impact on her daily activities, her lifestyle, and her wellbeing; and
  • retell her treatment journey — describing the details of the medical tests and treatments in her quest to be pain-free.

Soula’s inspiration for {Pain}Train

Often, Soula finds the retelling of her medical history traumatic. She always finds it tedious.

One of the problems of having to retell the story of the experts Soula has seen and the treatments she has tried is that Soula — as many of us would — finds it difficult to remember, in sufficient detail, the names of the experts she’s seen, when she saw them, the names of the tests they carried out, the treatments they experimented with, which ones worked, which ones didn’t, the variations on the experimentations, the names of all the medications, the doses, the frequency, etc.

“I felt I had lost my independence, I couldn’t communicate and express my personal experience and that no one understood me.”

Soula Mantalvanos, patient and founder of {Pain}Train

Along the way, Soula developed the idea for {Pain}Train to help ease the patient’s journey, to save everyone associated with the patient’s journey time and money, and to help people in pain to manage their pain.

One of the key’s to living with and overcoming any chronic health issue is that the patient must accept their pain issue and must take responsibility (where possible) for managing it. For a patient to do this, they need the correct resources, confidence in those resources and above all trust that their personal information will not be abused but rather will be used to help with their treatment.

 

“…I like the format as it allows me to express my issues in an organized manner. I have found when I am seeing Doctors I am often drowsy from medications, nervous and in pain. When talking to them I often can’t get my words out until I have built up a rapport with them.

My Doctors have all been fantastic but I sometimes feel they focus so much on the medical symptoms and drugs etc that they don’t get the big picture of how pain is affecting my life.”

 – Frances Jolly, patient

{Pain}Train’s approach minimises the issues that have discouraged patients from using online medical record systems.

{Pain}Train aims to help people to empower themselves to manage their own health — independent of government input and independent of competing government objectives.

Soula and Theo pain-related advocacy and education activities

Since Soula’s accident, Soula and Theo have:

Soula’s many years of chronic pelvic pain has provided a great insight into the urgency of a new approach to living with pain and so far, is proving to be effective.

Soula and Theo’s background

Before Soula’s accident, Soula and Theo ran their own creative communications company, Origin of Image (ooi).  Their first-hand knowledge of creativity, communication and chronic pain provides a progressive approach to the current chronic pain world.

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