Advocacy
Soula uses her many years of chronic pelvic pain to provide an insight into the need for a new approach to living with pain.
Since Soula’s accident, Soula and Theo have:
- Created pudendalnerve.com.au — a website created to give hope to people with chronic pain and to educate those who treat them
- Self-published Art & Chronic Pain, a simple ‘story-like’ book that helps people with chronic pain explain what it’s like to have the condition
- Presented Soula’s story to 180 practitioners interested in chronic pain at The Alliance for Improving the Management of Pain 2014 in Sydney, Australia
- Created a documentary The Hurting Strings the story of Soula’s non-drug dependent approach to managing and living with chronic pain
- Been interviewed for the 7.30 report – Choosing practitioners on the new website whitecoat.com.au, which enables people to rate, compare and find healthcare practitioners
- Joined the Alcohol & Drug Foundation’s A risk – medication harms campaign
- Soula and PainTrain featured in AMA VICDOC magazine
- Presenting Soula’s patient resources at the Royal College of General Practitioners (RCGP) GPADD18 Dealing with Addiction Conference
- Twice been invited to present patient resources at the Murray City Country Coast GP Training session ‘An Approach to Chronic Non-Cancer Pain’ with Dr Paul Grinzi
- Developed a member resource video interview series of the people who have made the most impact on Soula’s pain management