Soula makes note of her swivelling thoughts in her 2019 health summary

Soula has another demonstration for us!

Now four months post op after her Spinal Cord Stimulation implant, Soula is accumulating some important experience with her new treatment and she doesn’t want to forget it when she goes to her next appointment.

The Boston Scientific group have provided many programs for Soula to explore.

During these trials, Soula felt she had to make note of a few swivelling thoughts while using the programs. Continue reading “Soula makes note of her swivelling thoughts in her 2019 health summary”

Donating $6 From Every Subscription

PAIN RESEARCH – How Much do we Value it?

A great deal!!

Australia is fortunate to have some pretty incredible people who gain global attention for the work they do.

We’re not talking a little ‘inspo’ here, we’re talking about people who are leading Australia with their research. The kind of team that every country is watching.

Well, PainTrain holds one such incredible team in very high regard. They are the UniSA and they’re aiming for a Pain Revolution. Continue reading “Donating $6 From Every Subscription”

PainTrain: 2019 Pain Revolution Ambassadors

Pain is relevant to all of us.
This research is relevant to the world.
Please, help with the Pain Revolution fundraiser by donating.

Australia is fortunate to have some pretty incredible people who gain (and deserve!) global attention for the work they do.

We’re not talking a little ‘inspo’ here, we’re talking about people who are leading Australia with their research. The kind of team that every country is watching.

Well, PainTrain holds one such incredible team in very high regard.

They are the UniSA and they’re aiming for a Pain Revolution. PainTrain are in huge support of the idea as we were last year in 2018 when we raised over $800. Continue reading “PainTrain: 2019 Pain Revolution Ambassadors”

How Soula Uses PainTrain Through A New Treatment Trial

The spinal stimulation trial

Soula is currently receiving some new treatment after her sacral stimulation implant became problematic and stopped providing pain relief.

Although Soula created PainTrain expecting it to be a supportive and functional tool for people living with chronic pain, it still seems to pleasantly surprise her in new situations. 

Resorting to PainTrain through her spinal cord stimulation trial, Soula wanted to predominately keep her history together and to also document the information once, storing it in a safe place.

Continue reading “How Soula Uses PainTrain Through A New Treatment Trial”

My Health Record vs PainTrain – My Health Summary

Um, actually, they aren’t in competition. They are two very different online resources.

Actually, My Health Record and PainTrain aren’t in competition. They are two very different online resources.

There’s no turning a blind eye or choosing to stay away from this technology change as it is affecting you right now and there is a decision you need to make within three months about your autogenerated account on My Health Record.

Are you staying in or opting out?

I opted out. Continue reading “My Health Record vs PainTrain – My Health Summary”

PainTrain Through to Stage 1 of the Victorian Premier’s Design Awards

We are thrilled that PainTrain – My Health Summary has been shortlisted for a significant Australian design award.

Established by the Victorian Government in 1996 as the Victorian Design Awards, the Victorian Premier’s Design Awards recognise and reward Victorian designers and businesses that display excellence in the way they use design.

The awards provide an opportunity for businesses and the community to better understand the role of design in making products, services, spaces and experiences more functional, safe, efficient and attractive. The awards also help raise awareness of the impact design can have on productivity and business outcomes and the role it plays in helping to shape a better environment and society.

We will certainly keep you posted!

Read more/view our entry

Royal Australian College of GP’s news – Soula’s in it!

Soula is an event in the spotlight. GP’s, we hope to see you at GPADD18
(Article from RACGP June newsletter)

Events in the spotlight
GPADD18 Conference: Saturday and Sunday 4–5 August 2018

Soula -01sm

The RACGP Victoria Drug and Alcohol Committee invite you to attend the 2018 conference, GPADD18 – Dealing with Addiction. This conference will address some of the most common addictions and associated conditions that are presented to GPs in their daily practice, including chronic pain, motivational interviewing, hepatitis C and pharmacotherapy. Continue reading “Royal Australian College of GP’s news – Soula’s in it!”

Using PainTrain This Week With My GP

(Posted by Soula, 16 June 2018)

I had a GP appointment yesterday.

I updated my PainTrain health summary and emailed my private access link to the medical centre so they could forward it to my doctor.

On the way in, I remembered that I needed to check if my pain specialist’s referral was out of date. So,I added the reminder quickly by logging into PainTrain on my phone.

As you can see, I have a little shoulder pain issue.

Two minutes into the appointment my doctor asked, ‘What’s going on with your shoulder?’ – I hadn’t said anything about this latest issue yet! 

Continue reading “Using PainTrain This Week With My GP”

Soula Presenting at GPADD18 – Dealing with Addiction Conference

In the upcoming GPADD18 conference, Soula will draw on her communication skills as well as her 11 year patient experience and talk about chronic pain’s perception, and also present her pain management resources.

Using her personal chronic pain experience and her creative skills as an artist and graphic designer, Soula created pudendalnerve.com.au where she documents her experience and collates her findings about the condition.

Soula has come to realise that the key to living with ― and overcoming ―  chronic pain is accepting it and taking responsibility for its management. She also found that having to retell and update her story to a range of professionals was time consuming, tedious, and often traumatic and so founded PainTrain – My Health Summary. Continue reading “Soula Presenting at GPADD18 – Dealing with Addiction Conference”