The following is PainTrain MHS official public media release information
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PainTrain MHS Mission
To empower people living with chronic pain by providing a way to profile their unique experience and share it with whomever they choose, including health care practitioners, carers, family and friends.
PainTrain MHS Vision
To help improve the level of care for people managing chronic pain by making appointments more efficient.
What Does PainTrain MHS do?
While medical record systems and pain diaries exist, we did not find any of them allowed patients to summarise the level of detail needed to explain how the pain was affecting their lives wholly.
These products also did not record all the details often required by health care practitioners.
A system was needed to couple together all the aspects of a patient’s pain journey and put them in the driver’s seat to manage their care better. Thus, we built PainTrain MHS.
Think of PainTrain MHS as a type of patient CV!
Key points of PainTrain MHS
PainTrain MHS, founded by Soula Mantalvanos, is a resource resultant of Soula’s combined design & chronic pain experience.
The information patients put into PainTrain MHS is graphically presented and accurately summarised so that health care practitioners need only glance at the entire patient story.
PainTrain MHS frees up time in appointments to discuss treatment and pain management techniques.
The patient always owns the information stored on PainTrain MHS. Furthermore, only the patient remains in control of the accessibility options.
Patient and specialist support
Patients and pain specialists have been – and continue to be involved in the development of PainTrain MHS to improve the system.
PainTrain MHS’s Advisory Group are people with lived experience and health care professionals whose focus is/has been within pain management.
“I felt I had lost my independence, I couldn’t communicate and express my personal experience and that no one understood me.”
– Soula Mantalvanos, patient and founder of PainTrain
“Pain is complex, and the experience of pain is unique to each individual. Keeping track of symptoms, treatments, concerns, successes, medications, and current understanding of our pain experience can be incredibly challenging, especially when records are not readily shared between different practitioners.
PainTrain addresses this barrier to effective care through an accessible and easy-to-use online resource that empowers patients and eases the burden of always having to retell their story, which can be especially difficult when pain levels are high and can also be retraumatizing. This also eases the burden of time constraints for the healthcare practitioner.”
– Joletta Belton Co-chair Global Alliance of Partners for Pain Advocacy
“I have all my information on hand when visiting medical professionals.”
– Deb Thompson PainTrain subscriber
“From the practitioner point of view, PainTrain enhances the ability for us to grasp a detailed understanding of the patient’s experience and know what the patient expects from the appointment by viewing their personal notes.
The Echenberg Institute for Pelvic and Sexual Pain has evolved over the past 20 years and we are always seeking better forms of communication to enhance each patient encounter.”
– Robert J. Echenberg, MD, FACOG Owner and Pelvic Pain Practitioner The Echenberg Institute for Pelvic and Sexual Pain Lehigh Valley, PA
“Pain Train supports people who live with ongoing complex pain by providing a resource for a more supportive appointment approach, and I have found PainTrain to be a valuable patient-controlled information sharing instrument that facilitates the patient-doctor relationship, which is so important in the long term management of pain.”
– Dr Paul Grinzi Medical Educator, Royal Australian College of General Practitioners and Murray City County Coast GP Training
“Founder Soula Mantalvanos developed PainTrain to address a large area of unmet need; communication between those Australians who are affected by pain, and their health practitioners. This has social, educational, employment and economic implications in Australia and throughout the world.
At the Pelvic Pain Foundation of Australia, we recognise the need for innovation in this area. We strongly support Pain Train as an important step forward with international potential.
Pain Train is easy to understand and provides a brief, to-the-point summary for time-poor health practitioners.”
– Dr Susan Evans Chair, Pelvic Pain Foundation of Australia
‘Improving quality & efficiency of clinical engagement with health professionals.’
– John Quintner FFPMANZCA. Physician in Pain Medicine (retired) Pain Educator, Arthritis & Osteoporosis WA
In a PainTrain MHS 2021 Study 10 people (clinicians / users / non users) were asked to view a patient health summary for one minute and asked what they liked most. Their answers were:
- The insight I gained 20%
- The easy communication 50%
- The patient input 20%
- I didn’t like it 10%
In a second 2021 online study via a social media platform followers were asked to view ‘Dorothy Gale’s’ health summary for 2 mins and report on what they found most valuable about PainTrainMHS:
- It gave me the full story 66.7%
- The patient engagement 16.7%
- Effectiveness 16.7%
- It’s not valuable 0%
PainTrain MHS subscription
PainTrain MHS costs $29 per year (inc. Aus tax) / $26.36 (ex. tax) for full access (unlimited health summaries, no add ons or advertisements).
PainTrain MHS affiliate system
PainTrainMHS offers an affiliate system for anyone who recommends subscribers.
The affiliate system is activated when a patient subscribes to PainTrainMHS and inputs the referrer’s name on their registration form.
An affiliate receives a payment of 30% from every referred subscriber’s annual fee. An affiliate will continue to receive payment of 30% of the annual fee for every account renewal, providing the patient continues to subscribe.