Neos Kosmos Chronic Pain: the Treacherous Disease that Steals the Lives of Thousands

(Excerpt from Neos Kosmos feature story by

Πρόκειται για μια ψηφιακή πλατφόρμα καταγραφής του ατομικού ιστορικού των πασχόντων από χρόνιο πόνο έτσι ώστε να μην χρειάζεται κάθε φορά που επισκέπτονται τους διάφορους ειδικούς να επαναλαμβάνουν τις ίδιες πληροφορίες ξανά και ξανά κάτι που είναι τρομερά ψυχοφθόρο για τους ίδιους, όπως μας διαβεβαιώνει η Σούλα εξηγώντας μας πώς ξεκίνησε η ιδέα του Pain train.

It is a digital recording platform for chronic pain sufferers’ personal history so that the person does not have to repeat the same information. It is traumatic, Soula assures us this is where the idea of ​​PainTrain began.

«Έχω ασχοληθεί πολύ με την υπεράσπιση των ατόμων που υποφέρουν από χρόνιο πόνο κυρίως επειδή δεν ήθελα κανείς να αισθανθεί τόσο χαμένος όσο εγώ όταν μπήκα σε αυτόν τον κόσμο του πόνου.

“I have been very involved in defending people who suffer from chronic pain mainly because I did not want anyone to feel as lost as I did when I entered this world.

Read the full story

Royal Australian College of GP’s news – Soula’s in it!

Soula is an event in the spotlight. GP’s, we hope to see you at GPADD18
(Article from RACGP June newsletter)

Events in the spotlight
GPADD18 Conference: Saturday and Sunday 4–5 August 2018

Soula -01sm

The RACGP Victoria Drug and Alcohol Committee invite you to attend the 2018 conference, GPADD18 – Dealing with Addiction. This conference will address some of the most common addictions and associated conditions that are presented to GPs in their daily practice, including chronic pain, motivational interviewing, hepatitis C and pharmacotherapy. Continue reading “Royal Australian College of GP’s news – Soula’s in it!”

Putting People in Pain in the Driver’s Seat

(From the Pain Revolution website)

Soula Mantalvanos and Pain Train join the Pain Revolution

Community action and learning together is a key part of the Pain Revolution message. We need to include all people in the conversation if we’re going to make the changes needed to reduce the burden of persisting pain.

We have some wonderful people in our community that have stories to tell. They don’t ride bikes but that doesn’t keep them on the sidelines. One of those people is Soula Mantalvanos, who has given us permission to borrow some of her energy and passion as a Pain Revolution ambassador.

Soula Mantalvanos Pain Train

Hearing about the lived experiences of people in pain is critical to designing the future of pain care. We’re including the voices of people living with pain alongside our expert and professional voices. For too long, the stories of the people that live with pain, often heroically and with great resilience, have not been heard and understood. Within them is great insight and wisdom, as well as struggle.

Continue reading “Putting People in Pain in the Driver’s Seat”

Pain Train VICDOC: ‘Time-saving tool for managing chronic pain’

Current edition of VICDOC available via the AMA Victoria website

Time-saving tool for managing chronic pain

Written by Kate James

‘While one in five Australians experience chronic pain (and one in three over 65 years), the National Pain Strategy indicates that many health professionals have limited training in pain management. There is a shortage of pain clinics, public waiting lists are on average two years’ long, and it’s often left to GPs to manage complex conditions in short appointments.’ Continue reading “Pain Train VICDOC: ‘Time-saving tool for managing chronic pain’”

Pain Australia newsletter – Get on Board the Pain Train

(Article from the Pain Australia October 2016 newsletter)

Soula Mantalvanos knows a lot about living with pain—and the frustrations of retelling her story to every new doctor and health professional.

Hoping to make the journey easier, she developed {Pain}Train, an online platform where patients can record and store personal pain-related information, as well as upload reports and test results.

Patients can then share their profile with medical practitioners prior to a consultation, and even check if it has been viewed. They can also revoke access.

“{Pain}Train allows patients to communicate their history without carrying an enormous paper file with them,” said Soula, who has been living with pelvic pain for almost 10 years.

“Like many with chronic pain, I’ve been asked the same questions a lot over the years: how did the pain begin, what investigations have you had, did you bring any reports, and questions about treatments, medications and other therapists.

“Severe pain, fatigue and the influence of strong painkillers, can affect a person’s ability to provide an accurate picture of their pain experience.” Continue reading “Pain Australia newsletter – Get on Board the Pain Train”