(Written by Soula Mantalvanos, Founder Pain Train)
That’s easier said than done.
When I first had my accident in 2007 and literally landed in chronic pain, the last thing I expected to hear at any appointment was that I had to manage and coordinate my own treatment.
It was confusing when I was asked what treatment I thought would be best for me to try next – wasn’t the professional meant to guide me?
But a decade later I now finally realise that I was driving my pain management and it was in fact my direction and feedback – from my unique pain experience that was making the difference.
Without the patient reporting their exact experience – which we now know is unique – there’s no way to plan or move forward.
I can’t imagine the complexity a professional faces when trying to help a patient who is unable to articulate their pain experience. But I know this is the general scenario and I know this because I experienced the difficulty of remembering, talking, thinking, documenting, reporting and navigating each minute while living with chronic pain. Continue reading “Encouraging Self Management”