User Experience is a hot topic right now in the digital health world and so the PainTrain team are hot onto it.
Thank you to Irith Williams who leads PainTrain through this process and also to Lissanthea Taylor for introducing us to her incredibly resourceful friend!
Who better than to begin the UX process than our founder, Soula, who initially had to map out her patient journey (pictured above) before delving into a very cathartic process with sticky notes. Continue reading “User Experience (UX) Research”
(From the Pain Revolution website)
Soula Mantalvanos and Pain Train join the Pain Revolution
Community action and learning together is a key part of the Pain Revolution message. We need to include all people in the conversation if we’re going to make the changes needed to reduce the burden of persisting pain.
We have some wonderful people in our community that have stories to tell. They don’t ride bikes but that doesn’t keep them on the sidelines. One of those people is Soula Mantalvanos, who has given us permission to borrow some of her energy and passion as a Pain Revolution ambassador.
Hearing about the lived experiences of people in pain is critical to designing the future of pain care. We’re including the voices of people living with pain alongside our expert and professional voices. For too long, the stories of the people that live with pain, often heroically and with great resilience, have not been heard and understood. Within them is great insight and wisdom, as well as struggle.
Continue reading “Putting People in Pain in the Driver’s Seat”
Pain Train: Ambassador for the Pain Revolution 2018
(Soula Mantalvanos Jan 19, 2018 pudendalnerve.com.au)
(Cut to the chase, I want to support the Pain Revolution 2018!!!)
I’ve got a soft spot for Professor Lorimer Moseley.
In Feb 2011 I had just had the peripheral stimulation implant op and was slowly emerging from my darkest days.
Alone at home while Theo started a new full time job and staring at our shut down graphic design business I was still unable to do very much at all but I listened to the radio and that was where I first heard Lorimer speaking. He was on Margaret Throsby’s show on ABC Classic FM.
I heard Lorimer explain chronic pain and the brain before coming to the conclusion that he was mad and switching off the radio.
I was angry that this professional was saying that my brain was really good at learning bad things and that my brain did that in the same way – and as well as it could learn good things.
As we now know, Lorimer was right and I’m still angry… but angry at my brain! Continue reading “Pain Train: An Ambassador for the Pain Revolution 2018”
I’ve met some exceptional people online who have helped educate me about chronic pain and helped with my pain management.
I don’t hesitate to write and connect with people but only if I have a question that I haven’t been able to find the answer for. I am conscious of their time.
I also make contact if I think that I may have some information that could help others with chronic pain and I can’t manage the communication from my patient voice – I reach out to the pros.
Lissanthea Taylor recently wrote a 4 part blog, Calls to Collaborative Care that was published on bodyinmind.org – it was written in my patient language.
Soon after, I saw Lissanthea comment on My Cuppa Jo’s (Joletta Belton)’s FB page (another dear exceptional person whom I met online). Continue reading “Chugging Around the Globe”
Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back?
Pulse+IT also recently posted their story, There’s a bad app for That.
There are various purposes health apps are made. From where I’m standing, my app was never a promise to solve a health problem – that’s impossible.
I’ve been asked many times why Pain Train isn’t available as an app. Pain Train currently is fully functional as a website on any desktop or hand-held device.
The two main agendas of Pain Train, are: Continue reading “Takes more than an app to explain pain”
We couldn’t resist sharing this humorous but realistic animation about chronic pain.
Professor Lorimer Moseley has played a key role in our founder’s pain management. But what we love most about this animation, is the simple way in which it communicates the monstrous chronic pain experience – we agree, it is a beast! Continue reading “Tame the Beast”