Repost from Soula: I Turned a Corner

(Original post on Soula’s blog pudendalnerve.com.au, I Turned a Corner)

Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We’re also learning to manage the sacrifices.

It makes me feel I’ve turned a corner.

Home, then

A couple of weeks ago, I actually did turn a corner.

After staying in Melbourne for a special family lunch, during the evening we also managed to catch up with old friends on our old pavement.

I kind of felt a little emotional pang when I turned into the city end of Gertrude Street and saw the magnolias enjoying the Autumn evening light and the little drizzle that was beginning.

Very steadily pacing my drinks, the night saw us hop around our old favorite spots.

The life turn happened when I stepped out of the Everleigh and instead of turning right to head ‘home’, Theo and I turned left to head to a city hotel. We were going to sleep at this hotel, wake up in the morning and return to Queenscliff. Theo had to work… Sunday.

I don’t often have overwhelming emotional moments. I really deal with life’s activities quite well. I mean, who would I think I was expecting a perfect life run, right? ‘Suck it up!’

But this was one of those overwhelming emotional moments and it was damn hard. I knew what it was. I recognised it as the overdue moment when I finally comprehended life had moved us on… away from ‘home’.

It finally caught up with me.

I lapped up every step away from my previous home as the rain fell on/off and the concrete took in all the glittery, yellow, autumn Melbourne evening lights. I bid abiento to each magnolia as I walked up the street. I also lapped up the arms that were around me and the huge hug that Theo and I stopped to have to mark our moment.

Home, now Continue reading “Repost from Soula: I Turned a Corner”

Pain Train VICDOC: ‘Time-saving tool for managing chronic pain’

Current edition of VICDOC available via the AMA Victoria website

Time-saving tool for managing chronic pain

Written by Kate James

‘While one in five Australians experience chronic pain (and one in three over 65 years), the National Pain Strategy indicates that many health professionals have limited training in pain management. There is a shortage of pain clinics, public waiting lists are on average two years’ long, and it’s often left to GPs to manage complex conditions in short appointments.’ Continue reading “Pain Train VICDOC: ‘Time-saving tool for managing chronic pain’”

Takes more than an app to explain pain

Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back?

Pulse+IT also recently posted their story, There’s a bad app for That.

There are various purposes health apps are made. From where I’m standing, my app was never a promise to solve a health problem – that’s impossible.

I’ve been asked many times why Pain Train isn’t available as an app. Pain Train currently is fully functional as a website on any desktop or hand-held device.

The two main agendas of Pain Train, are: Continue reading “Takes more than an app to explain pain”

Tame the Beast

We couldn’t resist sharing this humorous but realistic animation about chronic pain.

Professor Lorimer Moseley has played a key role in our founder’s pain management. But what we love most about this animation, is the simple way in which it communicates the monstrous chronic pain experience – we agree, it is a beast! Continue reading “Tame the Beast”

Encouraging Self Management

(Written by Soula Mantalvanos, Founder Pain Train)

That’s easier said than done.

When I first had my accident in 2007 and literally landed in chronic pain, the last thing I expected to hear at any appointment was that I had to manage and coordinate my own treatment.

It was confusing when I was asked what treatment I thought would be best for me to try next – wasn’t the professional meant to guide me?

But a decade later I now finally realise that I was driving my pain management and it was in fact my direction and feedback – from my unique pain experience that was making the difference.

Without the patient reporting their exact experience – which we now know is unique – there’s no way to plan or move forward.

I can’t imagine the complexity a professional faces when trying to help a patient who is unable to articulate their pain experience. But I know this is the general scenario and I know this because I experienced the difficulty of remembering, talking, thinking, documenting, reporting and navigating each minute while living with chronic pain. Continue reading “Encouraging Self Management”