“I have just started to use PainTrain after two and a half years of telling my story to multiple health care providers. My doctors have all been fantastic but I sometimes feel they focus so much on the medical symptoms and drugs etc that they don’t get the big picture of how pain is affecting my life.
I like the format of PainTrain because it allows me to express my issues in an organized manner. I’ve found when I’m seeing doctors I’m often drowsy from medications, nervous and in pain. When talking to them I often can’t get my words out until I have built up a rapport with them.”
PainTrain has been a very useful tool to store my chronic pain journey. I was injured back in 2010 so I have a long history.
It’s easy to forget practitioners I’ve seen or procedures I’ve had, storing everything in one place which makes it easy to access this information and paint a near-perfect portrait of my pain journey.
It’s easy to use and helps me store my day to day movement or lack of movement on a high pain day.
By storing my day to day movements it’s easier for me to see why I may have severely flared. I can then access if I perhaps did too much.
Soula herself having chronic pain has designed this site to help connect those of us living with chronic pain to the medical world, family and friends so that they best understand our pain journey and what we are going through.
Loving the PainTrain!
Looking forward to not having to repeat myself endlessly. And charting progress, even when it’s incremental.
All positive PainTrain!
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