We don't use your medical information at all. We protect it.
What do patients want?
I would like:
- help with communicating my journey without having to repeat myself
- access to my pain journey on any computer or hand held device 24/7, and ability to share this private information with whomever I wish safely
- to make the most of my time with HCPs and make my appointments as efficient as possible
- accuracy of my personal information
- to restore my confidence when meeting new HCPs
- help with communication between my HCPs, family, carers and friends which also aids with support
- transparency between my pain management team
- have confidence that my HCPs are united in the search for my diagnosis
- to easily provide my new HCP with my medical records if I change my HCP, (HCPs are often very slow to transfer records)
- to feel independent, confident and most importantly to manage my own pain journey